For the new folks here, Jack is my son and he was born 5 years ago with Super Ventricular Tachycardia.
For those that have been part of the AFF family, thank you for the prayers thru the years for our little guy.
He has been in the emergency room somewhere close to 18 to 20 times and hospitalized another 10 or more ranging from over-night to 30 days in the NICU when he was born.
Well the day that has been in our future is now fast approaching. We have known for the last 4 years that he would need surgery to correct the problem with his heart. That day is now set for July 15.
We will be weaning him off his medication over the course of a month before surgery and the week before, he and his mom will be in Ft Worth at the Ronald McDonald House (if there is availability) or a hotel close to Cooks Children’s there in Ft. Worth.
The goal is to kill the electrical pathway that causes the tachycardia. The really big concern is that the procedure will also damage/kill the electrical pathway that makes his heart beat.
If that happens, he will be on a pacemaker for the rest of his life. He would not be able to play any contact sports as this could damage the pacemaker and well…. You get the picture.
The problem with Jack is every single day is a contact sport. He starts Kindergarten in the fall, and recess for him is full on contact sports….
We are praying for healing and for NO PACEMAKER.
In addition to this, he also has what appears to be a membrane growing in one chamber of his heart, and the Drs. will be looking at this to see if it will require surgery to remove. If that is the case, we will schedule a second heart surgery to deal with that. We are praying that they will find nothing to worry about with this and it will be a non-issue
This AFF family is a quirky bunch and boy do I fit in with that “quirky” part! You guys have walked this path with us from the beginning and I surely covet your prayers now. Please pray with us that this is the beginning for Jack with no medicine, no problems and a healthy Heart
Thank you for your prayers thru the years for both Levi and Jack.
__________________ If I do something stupid blame the Lortab!
A little more background for the newer members: My oldest son (who received the Holy Ghost last week) was born 8 years ago with Chaotic Atrial Tachycardia. Both boys were born premature and both spent time in the NICU at birth. Levi for 2 weeks, Jack for a month.
Levi’s tachycardia cleared by 6 months and has never had another bad heartbeat. He was released from the cardiologist at 5 years of age and is perfectly healthy.
__________________ If I do something stupid blame the Lortab!
Will be praying Ferd, and thank you for sharing the background for those of us who haven't walked with you from day one in this journey. Will indeed spend time in prayer for your son Jack, and for the family as well! Please keep us posted with any updates.
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People who are always looking for fault,can find it easily all they have to do,is look into their mirror.
There they can find plenty of fault.
I will be praying. As the date gets closer be sure and remind us.
__________________ "I think some people love spiritual bondage just the way some people love physical bondage. It makes them feel secure. In the end though it is not healthy for the one who is lost over it or the one who is lives under the oppression even if by their own choice"
Titus2woman on AFF
"We did not wear uniforms. The lady workers dressed in the current fashions of the day, ...silks...satins...jewels or whatever they happened to possess. They were very smartly turned out, so that they made an impressive appearance on the streets where a large part of our work was conducted in the early years.
"It was not until long after, when former Holiness preachers had become part of us, that strict plainness of dress began to be taught.
"Although Entire Sanctification was preached at the beginning of the Movement, it was from a Wesleyan viewpoint, and had in it very little of the later Holiness Movement characteristics. Nothing was ever said about apparel, for everyone was so taken up with the Lord that mode of dress seemingly never occurred to any of us."
Quote from Ethel Goss (widow of 1st UPC Gen Supt. Howard Goss) book "The Winds of God"
Wow! Cannot imagine what you and your wife are going through and have gone through as parents. Will join in with other AFF's in prayer for your son! May the doctors perform as our God performs the awesomeness of healing and may Jack be able to be a normal "sporting" boy!
Been Thinkin
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"From the time you're born, 'til you ride in the hearse, there ain't nothing bad that couldn't be worse!"
LIFE: Some days you're the dog and some days you're the hydrant!
I have ... Hippopotomonstrosesquipedaliophobia! The fear of long words.
"Prediction is very hard, especially about the future." - Yogi Berra
"I love the man that can smile in trouble, that can gather strength from distress, and grow brave in reflection." - Thomas Paine
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