For the new folks here, Jack is my son and he was born 5 years ago with Super Ventricular Tachycardia.
For those that have been part of the AFF family, thank you for the prayers thru the years for our little guy.
He has been in the emergency room somewhere close to 18 to 20 times and hospitalized another 10 or more ranging from over-night to 30 days in the NICU when he was born.
Well the day that has been in our future is now fast approaching. We have known for the last 4 years that he would need surgery to correct the problem with his heart. That day is now set for July 15.
We will be weaning him off his medication over the course of a month before surgery and the week before, he and his mom will be in Ft Worth at the Ronald McDonald House (if there is availability) or a hotel close to Cooks Children’s there in Ft. Worth.
The goal is to kill the electrical pathway that causes the tachycardia. The really big concern is that the procedure will also damage/kill the electrical pathway that makes his heart beat.
If that happens, he will be on a pacemaker for the rest of his life. He would not be able to play any contact sports as this could damage the pacemaker and well…. You get the picture.
The problem with Jack is every single day is a contact sport. He starts Kindergarten in the fall, and recess for him is full on contact sports….
We are praying for healing and for NO PACEMAKER.
In addition to this, he also has what appears to be a membrane growing in one chamber of his heart, and the Drs. will be looking at this to see if it will require surgery to remove. If that is the case, we will schedule a second heart surgery to deal with that. We are praying that they will find nothing to worry about with this and it will be a non-issue
This AFF family is a quirky bunch and boy do I fit in with that “quirky” part! You guys have walked this path with us from the beginning and I surely covet your prayers now. Please pray with us that this is the beginning for Jack with no medicine, no problems and a healthy Heart
Thank you for your prayers thru the years for both Levi and Jack.
__________________ If I do something stupid blame the Lortab!
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