Toddler feeding issues

[kristian's_mom]

Originally Posted by Traci

My 4 1/2 year old daughter has feeding problems as well but she has Cornelia DeLange Syndrome and it is to be expected. She had a feeding tube placed at 2 weeks old and we used that all the time till she had her cleft palate repaired at 10 mos. At that time she started drinking Pedisure and has been drinking that every since. She takes no solid's at all at this point. Won't let us put anything in her mouth most of the time--except every once in a while she will take yogart or applesauce but thankfully there is Pedisure (she will take that until she is 12 than she will use Ensure. As long as she has 6 cans a day she is getting all the vitamins and minerals that she needs.(we do have to have a nutrionist re-calculate every so often to make sure she is getting enough but it seems she just starts taking more naturally as she gets older) She usually feeds herself by sippy cup but sometimes we do feed her by her feeding tube.

Has you doctor ever suggested Pedisure?


I know that the idea of a human being not eating solid foods can be stressful and even a foreign concept to most but really the most important thing is that he/she is getting all the nutrition that they need. (Sometimes when my Irritiable Bowel is acting up I eat baby food--I actually like it)

I do pray you find the answers that you need.

Thank you for your prayers, and I hate that your daughter has to go through this. My husband keeps saying to look at it this way, he won't be entering high school still eating baby food! You can say the same for your daughter too. Until then though, God help us, lol!

No he hasn't suggested Pediasure, he is getting all he needs right now from the baby food. Good news though, we called and fought with our doctor to get a referral and finally got one!!

They sent a referral out to a bunch of different places, and out of the 7 places we called, only one wasn't booked up until the end of next year. They want to run a scope down his throat just to make sure the acid that was in his body frm being in DKA hasn't damaged it. We have to wait until Dec. 9th to get this going. I'll keep you guys posted. I am going to throw a party when he starts eating solids, lol.