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Old 03-13-2009, 07:14 AM
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Join Date: Jul 2008
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Re: Five Years Ago Today...

Quote:
Originally Posted by HeavenlyOne View Post
Thanks to everyone for the comments. You are wonderful friends. I'm blessed.

Jim, my condition has a few names. The two main ones are Pseudotumor Cerebri and Intracranial Hypertension. It's more common in women but men can have it too.

There aren't really any definitive tests except by process of elimination, but having a spinal tap after everything else is negative will solidify a diagnosis, as the spinal pressure would be elevated but the fluid must be clear.

Keep me posted. I hope this isn't what you have, but at the same time, it's nice to know what is going on. I didn't know for years.
While I can relate, in general, to some of the symptoms you've described here, I am not suffering anything close to the severity of what you have described. I was relating more to the arrogance of doctors and their "nothing wrong with you" diagnoses. It offends me that I can be in such pain and another human can look at me, and can SEE that I'm obviously in pain, and tell me I've basically imagined it all. I'm not crazy, and I'm not a hypocondriac (sp?), and I'm not looking for special attention. I'm just looking for relief from the pain.

Your story gives me a renewed will to keep fighting and getting second opinions. Thanks for your testimony.
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