While I can relate, in general, to some of the symptoms you've described here, I am not suffering anything close to the severity of what you have described. I was relating more to the arrogance of doctors and their "nothing wrong with you" diagnoses. It offends me that I can be in such pain and another human can look at me, and can SEE that I'm obviously in pain, and tell me I've basically imagined it all. I'm not crazy, and I'm not a hypocondriac (sp?), and I'm not looking for special attention. I'm just looking for relief from the pain.
Your story gives me a renewed will to keep fighting and getting second opinions. Thanks for your testimony.
Now if it offends you when a doctor displays such arrogance, how does it make you feel when a preacher tells you, or someone you know, that you just need to "pray more"? -No matter what the problem or issue is, physical or mental.
This is the reason that I learned many years ago not to let people see me pray. If I am going through a struggle, they will just assume "ok, he's praying. Struggle over".
If you could see what I have seen in regards to HO's condition then and now, you would be awstruck by what God has done and continues to do.
HO is one incredible lady that God can and does use for His glory. The enemy has fought and continues to fight but HO is a fighter and just doesn't go down so easy.
I've said it before and I'll say it again...I am so very proud (in a good way) of my best friend, HeavenlyOne.
And I'll be seeing her in a few hours!
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"The only thing worse than murder in the desert is to know where the water is and not tell it!"
I don't drop in as much as I used to, but just had to log in after seeing this thread. I prayed for you often during those days. I thank God for meeting the need, whether it was an instant miracle, or through the skills of a surgeon. There is a special place in my heart, a bonding if you will, for those of us that started so long ago on this thing we call forums. I will forever count us as friends.
I don't drop in as much as I used to, but just had to log in after seeing this thread. I prayed for you often during those days. I thank God for meeting the need, whether it was an instant miracle, or through the skills of a surgeon. There is a special place in my heart, a bonding if you will, for those of us that started so long ago on this thing we call forums. I will forever count us as friends.
Matt, the only time you ever saw me was when I was very sick. I tried my best not to let it show and have a good time, in spite of the constant pain I was in. I remember bits and pieces about our meeting, but I wish I had more. I'm glad to call you a friend of mine. We will have to meet again sometime so I can have better memories!
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I've gone and done it now! I'm on Facebook!!!
Thanks to everyone for the comments. You are wonderful friends. I'm blessed.
Jim, my condition has a few names. The two main ones are Pseudotumor Cerebri and Intracranial Hypertension. It's more common in women but men can have it too.
There aren't really any definitive tests except by process of elimination, but having a spinal tap after everything else is negative will solidify a diagnosis, as the spinal pressure would be elevated but the fluid must be clear.
Keep me posted. I hope this isn't what you have, but at the same time, it's nice to know what is going on. I didn't know for years.
Thank you for that.We all need to know that we are not alone in any instant in our lives and I know that God was with you through it all and you are a walking testimony!! Praise Jesus!!
Wow, HO! I have heard your story in person, but reading it again is a refresher on what you went through. Doctors are pretty good for saying there is nothing wrong with you.....I think what that means is "I don't know", but it's hard because they are supposed to help you. Sorry for what you went through. I know you are a more compassionate nurse and person because of it!
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Those who say it cannot be done should not interrupt the people doing it. ~Chinese Proverb
When I was young and clever, I wanted to change the world. Now that I am older and wiser, I strive to change myself. ~
I was going to not post this on this thread.....not wanting this to get turned into being about me......but then I thought I should....I know there are others out there who deal with the same thing....
Thanks for posting your story. I think it's great you shared. I didn't want to bring this up on your thread, but I have had a chronic on-going "neck" problem for years.....I have had an MRI and seen doctors only to be told "there is nothing wrong with you". It is not completely debilitating....but, when my neck cracks every once in a while, I spiral down fast....sometimes I have cried for 15 minutes after a neck pop and I get forgetful and can't think straight. This began during the years that I talk about the depression I experienced after a minor car accident. This happened 3 months after the birth of my first baby so I think I had postpartum depression too. I have seen many doctors who all say it is anxiety/depression. BUT!!!! When I go to the chiropractor and get adjusted, voila!! I can think more clearly and most of the depression immediately disappears. But, I think there is always a thread of it that remains with me....and nobody understands it from the outside. No one knows what it is like to have to deal with it and always be told there is nothing wrong with you. The neurologist I saw within the last year said there is nothing wrong with me, it is stress and I need to stop seeing the chiropractor so much!! I told this to my chiropractor who got very angry and she said "I don't tell you not to see the neurologist! He needs to stay in his field!"
Anyway, thanks for your story. I understand how it feels to be told the same thing....even though I am still generally functional. I think that having this depression and being told it was spiritual and that I was just basically spiritually lazy or something was devastating. And with it....the inability to reason kept me where I was. I have told my husband if he sees that my neck has popped and I am acting funny to take me by the face and say "GO to the chiropractor!" because my inability to reason sometimes keep me from going. The reason I never talk about this aspect of my life is that it has never been diagnosed as anything other than "there is nothing wrong wtih you". So, it's embarrassing and stressful to even bring it up. Your story gives hope in many ways....and I hate it when people just say to quit whining. Reality is reality. Sometimes all you need is someone to listen to everything you are dealing with and say "Hey, you really ARE dealing with a lot. No wonder you struggle now and then".
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Those who say it cannot be done should not interrupt the people doing it. ~Chinese Proverb
When I was young and clever, I wanted to change the world. Now that I am older and wiser, I strive to change myself. ~
Thank you so much for sharing this! I have dealt with frequent, chronic headaches for a long time. They are similar to migraine, but other than throwing increasingly stronger analgesics at me that render me completely useless and unable to function, it's hard to get anyone to listen to me and help me. The common thread seems to be CT scans don't show any abnormality. And people (friends) just don't understand. What's the big deal, right? It's "just a headache!"
This gives me such hope! I will continue to push the issue with my doctors, still praying all the while that God would somehow see fit to deliver me from it rather than carry me through it.
Would you be willing to divulge what exactly was your diagnosis? You can PM me if you would rather. I've not had the vertical double vision, but the pain that would last for days/weeks is something I am familiar with.
God bless!
Thought this was interesting!
Magnesium, another nutrient for which brown rice is a good source, has been shown in studies to be helpful for reducing the severity of asthma, lowering high blood pressure, reducing the frequency of migraine headaches, and reducing the risk of heart attack and stroke. How does magnesium accomplish all this? Magnesium helps regulate nerve and muscle tone by balancing the action of calcium. In many nerve cells, magnesium serves as Nature's own calcium channel blocker, preventing calcium from rushing into the nerve cell and activating the nerve. By blocking calcium's entry, magnesium keeps our nerves (and the blood vessels and muscles they ennervate) relaxed. If our diet provides us with too little magnesium, however, calcium can gain free entry, and nerve cells can become overactivated, sending too many messages and causing excessive contraction. Insufficient magnesium can thus contribute to high blood pressure, muscle spasms (including spasms of the heart muscle or the spasms of the airways symptomatic of asthma), and migraine headaches, as well as muscle cramps, tension, soreness and fatigue.
I was going to not post this on this thread.....not wanting this to get turned into being about me......but then I thought I should....I know there are others out there who deal with the same thing....
Thanks for posting your story. I think it's great you shared. I didn't want to bring this up on your thread, but I have had a chronic on-going "neck" problem for years.....I have had an MRI and seen doctors only to be told "there is nothing wrong with you". It is not completely debilitating....but, when my neck cracks every once in a while, I spiral down fast....sometimes I have cried for 15 minutes after a neck pop and I get forgetful and can't think straight. This began during the years that I talk about the depression I experienced after a minor car accident. This happened 3 months after the birth of my first baby so I think I had postpartum depression too. I have seen many doctors who all say it is anxiety/depression. BUT!!!! When I go to the chiropractor and get adjusted, voila!! I can think more clearly and most of the depression immediately disappears. But, I think there is always a thread of it that remains with me....and nobody understands it from the outside. No one knows what it is like to have to deal with it and always be told there is nothing wrong with you. The neurologist I saw within the last year said there is nothing wrong with me, it is stress and I need to stop seeing the chiropractor so much!! I told this to my chiropractor who got very angry and she said "I don't tell you not to see the neurologist! He needs to stay in his field!"
Anyway, thanks for your story. I understand how it feels to be told the same thing....even though I am still generally functional. I think that having this depression and being told it was spiritual and that I was just basically spiritually lazy or something was devastating. And with it....the inability to reason kept me where I was. I have told my husband if he sees that my neck has popped and I am acting funny to take me by the face and say "GO to the chiropractor!" because my inability to reason sometimes keep me from going. The reason I never talk about this aspect of my life is that it has never been diagnosed as anything other than "there is nothing wrong wtih you". So, it's embarrassing and stressful to even bring it up. Your story gives hope in many ways....and I hate it when people just say to quit whining. Reality is reality. Sometimes all you need is someone to listen to everything you are dealing with and say "Hey, you really ARE dealing with a lot. No wonder you struggle now and then".
Just a minor correction...this thread isn't about me, but about what God did for me. Telling your story is perfectly appropriate!
And giving hope is part of what I intended. I can't tell you how many times I felt so hopeless that all I felt was left was to die because living in pain like that the rest of my life wasn't an option.
Have hope, my friend. Hold on to it cause sometimes, that's all we have.
Praying for you every day.
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I've gone and done it now! I'm on Facebook!!!
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