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Old 06-29-2012, 08:55 AM
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Ferd Ferd is offline
I remain the Petulant Chevalier


 
Join Date: Feb 2007
Posts: 17,524
This kind of stuff just doesn’t happen to us

For those on facebook that are connected to Mrs. Ferd (you know who you are), you have already seen this.

But for others here, I thought I would share.


About a year ago, while returning from a Drs. Visit with our youngest son my wife stopped at a kids store. While there a lady stopped and asked about Jack. He was hooked up to a heart monitor at the time. They talked for a while as this lady has a child with serious medical issues as well.

Long story short the lady told Mrs. Ferd about an organization called A Wish with Wings. We sat on the information for a year but earlier this year, Mrs. Ferd made contact. After filling out some paperwork and submitting Drs. reports, they called us and wanted to meet Jack. They had asked in the paperwork if there was some vacation that would be special to Jack and we thought Sea World would be nice. It’s only a few hours away by car and not a big trip albeit out of our budget considering the medical bills we collect.

Well, after spending some time with these wonderful people they suggested a trip to Disney World! We were shocked. Honestly I thought this would be a long drown out process of meeting us, discussing it and then making a decision. Instead of that, we spent an hour with them and the end result is an all expenses paid trip to Orlando. We will fly there, they pay for a rental car, take care of car seats for the boys and all the other needs we have related to Jack etc.

We will be staying at a place called One World Village. This is on the Disney World property and is itself a 70 acre villa with its own water part and other amenities. Our food is paid for, our gas money is taken care of, we will have passes to all the Disney theme parks, plus passes to Kennedy Space Center, and Lego Land. There are tons of other things we could do but simply cannot fit into the week that we will be there. We met with them on Tuesday, the trip was booked on Wednesday!

It is truly a trip of a lifetime. It is something we could never give Jack ourselves. God has blessed us. These wonderful people at A Wish with Wings have blessed us. It has been a long journey with Jack and we have more to come but God is always there pointing the way and letting us know he has not forgotten.

We also had a checkup with Jacks Dr. It was the first “good” report we have had in a while. Last year his thyroid levels started creeping up. At that time, the Dr was pretty sure we would be doing surgery this year. Due to the physiology of Jacks heart, he was preparing us for a pacemaker. You can imagine what it means to have a 4 year old on a pacemaker for the rest of his life…

It seems the thyroid levels have leveled off and are back in normal range, so we can put of surgery for another year. The Dr. is pleased and seems to believe another year will give us the growth we need to see to avoid the pacemaker.

I know a lot of you guys have been with us from the beginning and have prayed a lot of prayers for Jack. It is much appreciated and a real comfort to us. Jack is an active little guy and you would never know he had the first problem just looking at him. We truly are blessed!
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